Boy’s leg swells to FOUR times its normal size due to rare genetic illness

'HIS HEALTH IS FAILING AS HE GROWS' Boy’s leg swells to FOUR times its normal size due to rare genetic illness --- A LAD of three has a rare illness which makes his leg swell to FOUR times its size. If little Akshaj Khandelwal tries to walk more than a few steps his limb bleeds – and it’s growing day by day. The tot has the genetic disorder Klippel-Trenaunay Syndrome (KTS), which affects one in 100,000 people, and can’t go to school alone. And unaware that it’s a medical condition, he believes his huge leg is a gift, it makes him a “superman” and he is lucky to have it. People steer clear for fear of being infected and his family worry he will be bullied by other kids as he grows older. Dad Ankur, from Delhi, India, thinks his boy is still too young to be told the truth about his leg – for which there is no cure. He said: “My son doesn’t know what the condition is. We don’t want to make him feel bad. His distraught parents have visited almost every hospital in the area but have not got help. Doctors at Fortis Hospital remain confused about the condition and say it is unlikely he will be treated successfully. KTS affects the development of blood vessels, soft tissues and bones. It has three main side effects: port wine stains, overgrown bones – particularly limbs – and varicose veins. Dr Krishan Chugh, head of paediatrics, said: “KTS is a form of malformation where the veins are not properly formed. It’s a disorder found mainly among children. Akshaj’s devoted parents admit it’s painful to watch their son suffer. Mum Shruti said: “We have met all the doctors in Delhi but till now we haven’t been able to find any treatment. His health is failing as he grows. | The Sun via IFTTT

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